busy day and finally a negative culture!

melanie was pretty wiped out after our morning adventues. she sat and then laid on her bed and broke up/crumbled cereal into tiny pieces for nearly three hours.

her meds started wearing off and she wasn't feeling good again. they had a video kiosk that they brought in which melanie had fun with (more on that later).

then we went out to the courtyard again. pastor bruce met us and came out too. we looked for bunnies again but they must be hiding.

then we went to the playroom and then i pulled her in the wagon.

trying to keep her mind off the pain, but she was still having a tough time. got swiched to iv zofran, so she got some of that in the afternoon; i still had a hard time getting her j-tube meds in.

our wonderful friend and hair stylist came and got through the rest of melanie's hair (thank you so much, christie!).

scott and the boys brought chocolate to visit. melanie has missed him so much; she was very excited to see him!

the boys didn't get to come wednesday, so they were happy to get lots of hugs. brandon is having a tough time and had lots of tears while here.

our friends rachel and maddie and belle came to visit and brought melanie some really neat homemade wall-e stuff! melanie slept on the pillow all night. she has a matching shirt and keychain that we put on the zipper of her tpn backpack. thank you so much rachel!

melanie isn't having as much pain so far this morning; i am very glad for that! praying it continues! yesterday's culture from the line was negative which is good news! if the one from today is negative for 48 hours we can talk about going home with 14 days of iv vanco. haven't figured out yet how we will administer tpn--not sure if it should go through her port. ID is still thinking about it. her platelets are slowly trending back up, so she will not need a platelet transfusion! her hemoglobin is lower than we usually let it go; not sure when she will be getting the blood transfusion of packed red cells.