still not sure what is going on. the ptosis (drooping eyelids) continued and was worse this evening.

she is not blinking in these pictures; this is how far open her eyes were after her shower

her eyes are also notably "different" when she looks at you. she almost appears "drugged."

not sure if you can see it in the picture; but she has the "drugged" look in this picture as she raises her eyebrows to help with the droopy eyelids

she did walk around a bit this afternoon and even had a good shower. she had an open area of skin under the dressing that covers her port today. it's sore and a little oozy. don't like to have open sores near her port. she was very fatigued after the shower and her eyes were very droopy. i carried her to bed, and she fell asleep quickly. another alarming sign is that her blood pressure is very low (68/42). she has never had a blood pressure that low. i spoke with the oncall resident who was very alarmed by the low blood pressure, especially in combination with her other symptoms. the most worrisome to me is the fact that this is so "different" than anything i've ever seen with melanie. the excessive fatigue, not able to stand for a few seconds, the severe ptosis, the "way" she looks at us, and the very low blood pressure. if she had a fever, i'd be into the ER in a heartbeat. but with no fever, it's possible this is all just part of a crash and she is autonomically unstable. the doctor i spoke to wanted me to bring her in now. i would just hate to drag her out of bed into the germ-ridden ER if this is all "just" a crash with autonomic instability . . .if that's the case the thing she needs most is SLEEP, which she would get very little of if i take her in. on the other hand, i'd hate to not take her in if this is the start of a line infection or something. ugh. i don't like making these decisions.