hugging baby and doing neb:
feeding baby a bottle:
the next three she is actually sleeping in, various positions she was in last night:
talking to her new baby:
hugs for the new baby:
opening her gift:
doing beads. she and i meticulously filled the entire square with beads! this is after the hair was, but only about 1/3 of her hair is combed through
after getting her hair washed
snuggling with pinky her puppy
visit from dad, brothers, and chocolate
getting a platelet transfusion plus all the other ivs
saw these kinds of numbers pretty consistently for about a week, thankfully better now: heart rate 170, respirations 40 (more often was near 50), oxygen SATS 89
well, i still have no news. for some reason, they never came to draw her labs this morning. called them twice and they came at 8. got some of the electrolytes back but not the cbc (with platelets!). nurse made a bunch of calls and finally found out the blood was lost. had to call the service, they put in a request for redraw, now still waiting on labs to be redrawn. how frustrating! melanie is looking good. still blood in her stool and slightly red-tinged urine. she has some new bruising and petechiae on her right wrist/arm that weren't there before. but nothing we can do or will know until those platelet results come back! she's been playing quietly in her bed this morning. we've played with her new doll, fuse beads, read books, and now she is playing ps2. still too weak to sit up but can prop up on her elbow. anyway, we just sit and wait. ugh.her respiratory rate is a bit higher today than yesterday, not really sure why. heart rate is still down since the red blood cell transfusion.i laid down around 1 a.m. and decided to try to stay laying down as long as i could. the result was that no one made sure her g-tube was draining (the hospital beds are angled up on the sides, so you have to manually push the side of the bed down to get the tube to drain well enough), and this morning she and the bed were soaked in gastric contents, bile, and probably stool (the pressure is so high in her tummy that if it can't drain down the tube, it is just forced out around the stoma). very frustrating that as i try to take care of the baby, melanie suffers.her urine seems suspicious for enterococcus this morning, but she does not have any other symptoms so i will just keep an eye on her and culture if she develops more symptoms.i'll update if i can when the labs are back. sure hope they are back before i go to my appt!
Geez Amber, I hope you're keeping tract of all you do for Melanie that the nurses should be doing so you can send them a bill; or at least deduct it off the one you're sure to get! Even though you do help, I'd think they'd come and check, especially since you're pregnant! Just wanted you to know that I keep Melanie, you and your entire family in my prayers! God Bless. Love, Judy
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